China’s gene giant harvests data from millions of women
A prenatal test used worldwide sends gene data of pregnant women to the company that developed it with China’s military. The U.S. sees a security risk.
Report Reveals that UK clinics are selling Down Syndrome test from Chinese company harvesting data from millions of mothers and unborn babies
Right to Life has reported that UK clinics are selling pre-natal tests from Chinese biotech company, BGI Group, which has been revealed in an investigation to have developed the tests in collaboration with the country’s military and using them to harvest the genetic data of millions of women and their unborn children, which is being analysed by artificial intelligence to do large-scale research on the traits of populations.
In a review of company statements and over 100 scientific papers, Reuters found that the BGI Group is using its prenatal tests as a source of genetic data harvested from China and abroad.
The ‘NIFTY’ (Non-Invasive Fetal TrisomY) test, used by over 8 million women across 52 countries including the UK, tests for genetic conditions such as Down Syndrome. BGI computer code, seen by Reuters, reportedly shows that the company is also capturing the genetic data from expectant mothers along with their height, weight and country, though not their names.
BGI have confirmed that they use leftover blood samples sent to its laboratory in Hong Kong, and genetic data from the tests, for population research.
The company also confirmed to Reuters that data collected from prenatal tests on women outside China has also been stored in China’s government-funded gene database.
Since 2010, the company has published at least twelve joint studies on the tests with the People’s Liberation Army, trialling and improving the tests or analysing the data they provided.
Last year, the company was added to a U.S. economic blacklist over allegations of conducting genetic analyses used to further the repression of Uyghur Muslims in Northwest China.
A BGI study using a military supercomputer reportedly singled out Tibetan and Uyghur minorities for the purpose of investigating links between their genes and their characteristics.
‘Screening out’ babies with Down Syndrome seen as a ‘cash cow’
In 2020, BGI declared that “screening out” babies with Down Syndrome is a “cash cow” funding the growth of the whole business.
In a segment from an Al Jazeera documentary titled Genesis 2.0, the spokesperson gestures towards a digital map of the world and says: “You can see clearly, especially for Down’s syndrome, we have nearly two million samples all over the world. This part is, what we call, BGI’s cash cow, making money to support the growth of the whole group”.
Dismissing a query over potential ethical concerns, she coldly adds: “…with the use of our technology, we could avoid the birth of birth defect, like a Down’s syndrome birth, a Down Syndrome child, we can screen them out, we can avoid the birth of them”.
Founder said it was a “disgrace” for BGI employees to have a child with a birth ‘defect’
This was not the first time BGI group or its late co-founder, Wang Jian, has courted controversy.
In 2018, the businessman caught the media’s attention for saying in an interview it would be a “disgrace” for any of BGI Group’s 7,000 employees to have a child with a birth ‘defect’.
Wang said: “It would mean that we are fooling society and just eyeing others’ pockets”. He added that there are no known serious congenital diseases among the 1,400 infants that have been born to the company’s employees.
Wang also appeared to not just want to eliminate children with Down Syndrome and other disabilities, but also wanted to promote a eugenicist mindset across the whole of China and prevent those with “a worrisome combination of genes” from having babies.
BGI Group’s core fertility business, BGI Genomics, generated more than half of the company’s revenue according to the company’s annual report.
The company claims it had processed over 4 million non-invasive prenatal tests globally by the end of 2018.
The release of the figures came shortly after the release of a report revealing that pregnant mothers who refuse to abort their children with Down’s syndrome are being pressured by some medical professionals to change their decision.
Currently, 90% of babies with Down’s syndrome identified in the womb are aborted in England, Wales and Scotland.
A spokesperson for Right To Life UK, Catherine Robinson said:
“Our current law allows babies with disabilities to be aborted right through to birth. Already 90% of babies diagnosed in the womb with Down Syndrome are aborted in Great Britain”.
“Now there is clear evidence the tests are leading to more babies with Down’s syndrome being aborted. It’s time that the Government pulled the rollout, and stopped being a ‘cash cow’ for corporations like BGI”.
“Not only have BGI admitted that they see ‘screening out’ babies with Down’s syndrome as a ‘cash cow’, but they are also using the genetic data from these babies and their mothers for controversial research”.